On pain

Hello again!

My right hip has been hurting the past couple of days. Or almost a week, I guess - it started last Wednesday and has been off-and-on since then. This isn’t super unusual for me. I have sacralization on that side - my fifth lumbar vertebra is fused to my pelvis (specifically, the ilium, and now the Classicist in me is trying to come up with a bunch of Trojan war jokes related to this congenital deformity). This can be painless but it can also cause lower back pain and bursitis, which is what this probably is. If it doesn’t go away in the next week, I’ll check in with my doctor about it. I’m of an age where these things might need to be resolved by injected steroids rather than careful application of over-the-counter pain relievers.

This pain is constant and so far no motion or position has really alleviated it. Distraction helps some, as I discussed yesterday, but only for a little while. The pain returns and I really don’t know how to work/live through it. I’ve gotten to the point where as long as a migraine isn’t demanding I go to bed and ensconce myself in darkness, I can kind of work through it, but this kind of musculoskeletal/joint pain is newer to me than migraines (I had my first one of those at 7) and I just don’t know how to get around it yet. It’s not the kind of pain that I can breathe through and I guess I could try some gate theory and hold ice in my bare hand or something but that’s not really conducive to tidying, writing, or applying for jobs.

I might need to get a new chair to work in. It’s possible these little folding dining chair things aren’t doing me any favors.

It surprises me how much pain can be a constant, how even if I think I’m not in pain, if anyone asks me about it I notice I am. But this pain, this I notice no matter what.

The goal for treatment of hypermobile Ehlers-Danlos Syndrome (which I may or may not have) is not to eliminate pain, but to reduce pain to a tolerable level. I don’t think the amount of pain I’m in right now could be reasonably described as tolerable.

This looks like a big pile of whining to me but I’m going to post it anyway. I don’t think people talk about pain enough.

Now I’m going to eat and have some of those OTC pain relievers I mentioned.

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Kimberly Hirsh, PhD @KimberlyHirsh
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