💬📚 “Do you want to look back on a life of items crossed off lists drawn up in response to the demands of others? Or do you want to hang on to, and repeat, and remember, the thrill of discovering things on your own?” Rob Walker, The Art of Noticing

📚💬 “I want a life capacious enough to contain what I choose to be true about myself and that which I did not but have nevertheless learned to work with, to use, to wield.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “…kindness is a form of magic we can choose to know how to do. What matters is attending to suffering, no matter why it’s there.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “In illness, the now feels like punishment.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “Maybe the blast radius of disability destroys everything and also makes new worlds. Maybe these are worlds of paradox: both the radical limitation of what you used to be able to do and an explosion of the horizon around what you thought would ever be possible.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “The most anti-capitalist protest is to care for another and to care for yourself. To take on the historically feminized and therefore invisible practice of nursing, nurturing, caring. To take seriously each other’s vulnerability and fragility and precarity, and to support it, honor it, empower it. To protect each other, to enact and practice a community of support. A radical kinship, an interdependent sociality, a politics of care.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “…this is the conundrum all sick and disabled people live with. To be pathologized is to be allowed to survive.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “When you have chronic illness, life is reduced to a relentless rationing of energy.” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “How can you throw a brick through the window of a bank if you can’t get out of bed?” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom

📚💬 “How many of us have already met our doom and then had to get out of bed and go on?” Johanna Hedva, How to Tell When We Will Die: On Pain, Disability, and Doom