Kimberly Hirsh, PhD

Hello again!

My right hip has been hurting the past couple of days. Or almost a week, I guess - it started last Wednesday and has been off-and-on since then. This isn’t super unusual for me. I have sacralization on that side - my fifth lumbar vertebra is fused to my pelvis (specifically, the ilium, and now the Classicist in me is trying to come up with a bunch of Trojan war jokes related to this congenital deformity). This can be painless but it can also cause lower back pain and bursitis, which is what this probably is. If it doesn’t go away in the next week, I’ll check in with my doctor about it. I’m of an age where these things might need to be resolved by injected steroids rather than careful application of over-the-counter pain relievers.

This pain is constant and so far no motion or position has really alleviated it. Distraction helps some, as I discussed yesterday, but only for a little while. The pain returns and I really don’t know how to work/live through it. I’ve gotten to the point where as long as a migraine isn’t demanding I go to bed and ensconce myself in darkness, I can kind of work through it, but this kind of musculoskeletal/joint pain is newer to me than migraines (I had my first one of those at 7) and I just don’t know how to get around it yet. It’s not the kind of pain that I can breathe through and I guess I could try some gate theory and hold ice in my bare hand or something but that’s not really conducive to tidying, writing, or applying for jobs.

I might need to get a new chair to work in. It’s possible these little folding dining chair things aren’t doing me any favors.

It surprises me how much pain can be a constant, how even if I think I’m not in pain, if anyone asks me about it I notice I am. But this pain, this I notice no matter what.

The goal for treatment of hypermobile Ehlers-Danlos Syndrome (which I may or may not have) is not to eliminate pain, but to reduce pain to a tolerable level. I don’t think the amount of pain I’m in right now could be reasonably described as tolerable.

This looks like a big pile of whining to me but I’m going to post it anyway. I don’t think people talk about pain enough.

Now I’m going to eat and have some of those OTC pain relievers I mentioned.

I’m working to get into the flow of daily blogging, so this post will be rather stream of consciousness.

I work best in two-hour chunks. Today, I helped W. revise a project statement for a fellowship application and applied to two jobs. I’m right around the two-hour mark and can feel myself flagging. It’s also time for that 3 pm snack most people need, so I’ll have that when I’m done blogging this.

I’m in the middle of a bit of a grace period for myself, not unlike Kelly J. Baker’s. I’m figuring out how I want to spend my time and what people will pay me for. Yes, I have plans for consulting, but I would also love a little bit of stability and to not pay out of pocket for health insurance. (Blessedly I’m on W’s but it increased his insurance cost by about $400/mo to add me. This was more expensive than any plan I could get on the market, I checked.) So I’m applying for jobs that look especially good, but not applying scattershot. I’m focusing on research and editorial jobs. Today’s jobs were editorial. I’ve got a couple research lined up to apply for tomorrow.

I’m physically very tired much of the time, which is partly because my thyroid levels are off. I don’t know if I’ve written about this recently, but I’ll doubt it. So a refresher in case you’re new here: I have Hashimoto’s thyroiditis, which manifests primarily as hypothyroidism. That means my body attacks my thyroid gland, which then doesn’t work well. I take two synthetic hormone medications to help, plus a couple of supplements to boost the natural production and conversion of thyroid hormones. The thyroid controls metabolism, literally how your body has energy, and my primary symptom is intense fatigue. I also expereince brain fog and joint pain. (I also have polycystic ovary syndrome so basically my whole endocrine system doesn’t know what it’s doing.)

Flares of hypothyroidism sneak up on me because it’s so easy to explain away the symptoms - I’m tired because I go to bed too late, I’m sore because I ate something that probably had corn in it (corn makes me achey), the brain fog is from the tiredness… But when I get lab tests, it’s easier to see the pattern: my thyroid levels, while “normal,” are suboptimal, which is why I feel low-grade misery rather than abject despair.

So in May, I found out those levels were suboptimal and increased the dosage on my supplements to see if, if I provide it with extra building blocks, my thyroid will produce more hormones. And if that’s not enough, we’ll increase the prescription synthetic hormone dosages. We’ll check on that in July.

I’m trying to take care of my body but honestly I don’t really know how to BE embodied. I’m a floating head, a cyborg lady who lives mostly on the web. Being attentive to my body usually means attending to pain and in my experience, distraction is more helpful than mindfulness. But I want to do better by my body, to feed it well and clean it enough and get it moving. But I think I have to do it very gently until this thyroid thing gets sorted out.

What is super weird is that sometimes even when my body is completely worn out, my mind is really active. This leads to a few different things happening. First, I notice all the things I’m not doing because my body is too tired: cleaning out the fridge, putting away the laundry, helping my kid pick up his room, etc. I notice these things and then, because it’s my default, I berate myself for not doing them. But I’m conserving all my energy for mothering so house stuff just has to wait until I have more energy. Sorry, house. Sorry, brain.

The other thing is that my brain wants something to chew on. At first, it was nice being done with my dissertation. But then recently W. was talking about how he was having to think through and write this appication and I thought, “Oh wow, it must be so nice to have something to have to think about and work on.”

But I also feel deeply unready for client work.

Which is part of why I’m here blogging. I’m going to spend at least a week blogging daily to get some activity in for my restless brain without wearing out my body or take on new stress.

So that’s where I’m at. I’m off to have a snack and rest more. How are things with you?